On March 27th, 2020 we received the devastating news that our spunky, silly and sweet William has a rare genetic disease... so rare, in fact, that it doesn’t even have a name. Right now, it is identified by the affected gene, SLC6A1. However, there is hope. It is not a matter of if the cure exists, it is a matter of when it will be created. Funding for a cure must continue, we have no other option. It has become our life’s mission to partner with the nonprofit, SLC6A1 Connect, to fund what we can and fundraise with our new friends; the families of William’s peers affected by the disorder.